For Patients and Families
The Columbia University Alzheimer’s Disease Research Center (ADRC) assigns equal importance to patient outreach and advocacy.
Patient Outreach and Advocacy
For over 25 years, the leadership of the ADRC has actively participated in local, national, and international efforts to support patient outreach and advocacy. These efforts include forums arranged by the National Institute on Aging, the Alzheimer’s Association, and other national organizations. Our Center also ensures that our research participants are provided with an optimal experience as we form our relationship with them and their care community.
The Columbia University ADRC is located in a heavily populated area in Manhattan and serves more broadly in the tri-state area including New York, New Jersey, and Connecticut. We have established close working relationships with local patient and caregiver support networks and other organizations—including museums, libraries, places of worship, and various assisted living communities.
On this webpage we have compiled local and national support groups and digital resources that you can use immediately.
Columbia University Center of Excellence for Alzheimer’s Disease (CEAD)
CEAD is dedicated to providing access to subspecialist care for individuals with Alzheimer’s Disease and related disorders.
Learn More About Dementia
Educational Videos for Patients and Caregivers
- Health & Memory Genetic Testing (English.) Interview with Jill Goldman, MS, MPhil, CGC; Professor of Genetic Counseling in Neurology Columbia University Irving Medical Center.
Health and Memory (English.) Interview with Dr. James M. Noble, Associate Professor of Neurology at Columbia University Irving Medical Center.
Salud y Memoria (Spanish.) Entrevista con el Dr. Rafael A. Lantigua; Profesor de Medicina y el Deán Asociado de Servicios Comunitarios.
Salud y Memoria (Spanish.) Entrevista con el Dr. Jose A. Luchsinger, Profesor de Medicina y Epidemiología.
Alzheimer's and Dementia Support Programs and Digital Resources
Helpline: 1.800.272.3900 Offers information and support services to people with Alzheimer’s disease and their caregivers and families. Alzheimer's Association TrialMatch® is a free, easy-to-use clinical studies matching service that generates customized lists of studies based on user-provided information.
CaringKind offers free services for people with memory loss and their families. Services include:
- Social Work Services
- Support Groups
- Early Stage Center
- MedicAlert® NYC Wander’s Safety Program
- Palliative and. Residential Care program
- TogetherWeCare® by CaringKind
- 24-Hour Helpline: 646-744-2900
Arts & Minds is a not-for-profit organization committed to improving quality of life for all people living with Alzheimer’s disease and other dementias through engagement with art. We partner with museums to provide meaningful art-centered activities that create positive emotional and cognitive experiences, enhance verbal and non-verbal communication, reduce isolation, and build community. Our programs empower people with dementia, family members, professional caregivers, and educators to strengthen social, emotional, and spiritual bonds by engaging with art.
Arts & Minds programs have moved from Museum spaces to your space! Check the website for programs you can view at home during COVID-19.
National Support Groups and Resources
Self-Care and the Caregiver
Everyday Care, Communication and Safety
Living Alone with Early-Stage Dementia
Dementia and Driving
Tips to Make Mealtimes Easier for People with Alzheimer's
How to respond to “ I Want to Go Home”
What is Sundowning? Coping Strategies